Nursing Research and Education Resources

Research Instruments

  1. Knowledge and Attitudes Survey Regarding Pain - City of Hope, Duarte, CA
    An instrument to measure knowledge and attitudes regarding pain in health care professionals. Used extensively by clinical settings for several years, this tool provides descriptive data regarding areas of needed pain education (Please see item #7). 
  2. Quality of Life Instruments - City of Hope, Duarte, CA
    - Bone Marrow Transplant Survivors is an 84-item tool specific for use in BMT.
    - Breast Cancer Patient Version is a 46-item tool specific for use in Breast Cancer.
    - Ovarian Cancer Patient Version is a 45-item tool specific for use in Ovarian Cancer.  Also includes Spanish version of the instrument.
    - Patient/Cancer Survivor Version is a 41-item ordinal scale that measures quality of life through physical, psychological, social, and spiritual domains. This tool has been used extensively in pain and cancer survivorship research. Also includes Spanish version of the instrument.     
    - Quality Care at the End of Life Survey  - This survey was designed based on the National Consensus Project for Quality Palliative Care Guidelines and was developed and used at the City of Hope as a tool for assessing quality care. Users are invited to adapt and use it in their own institutions to assess the quality of care provided and to measure the institution's performance in comparison with national guidelines. 
    - Quality of Life Family Version is a 37-item instrument that measures QOL of a family member caring for a patient with cancer. Also includes Spanish version of instrument.
    - Quality of Life for Patients with an Ostomy is a 47-item tool specific for use in Patients with an Ostomy.
    - Staff Survey on Ostomy Care is a 32-item tool specific for staff.
    - Thyroid Version is a 34-item tool specific for use in Thyroid Cancer.
  3. C.A.R.E.S. - An Acronym Organized Tool for the Care of the Dying.
    Developed by Bonnie Freeman, is an educational tool to help nurses stay focused and provide a method to inventory necessary tasks to address during the often chaotic and stressful last few days to hours of a patient’s life.
  4. C.A.R.E.S. - A Tool for the Care of the Dying
    - Self Care
    - Emotional Support
    - Restlessness
  5. Instruments Used in End of Life Care Education , City of Hope, Duarte, CA  
    A collection of instruments currently in use by City of Hope investigators to assess staff knowledge and needs to improve end of life care. Curriculum Survey for Nursing Schools; Clinical Nurse Survey; Home Care/Hospice Agencies; Home Care Nurses and HHAs; Knowledge Assessment for Nurses; Knowledge Assessment for HHA's; Chart Audit Tool; and a Case Analysis Form.
  6. The Patient Pain Questionnaire is a sixteen item ordinal scale that measures the knowledge and experience of a patient in managing chronic cancer pain. This tool can be useful in clinical practice as well as for research. This instrument can be administered by mail or in person.
  7. The Family Pain Questionnaire is a sixteen item ordinal scale that measures the knowledge and experience of a family caregiver in managing chronic cancer pain. This tool can be useful in clinical practice as well as for research. This instrument can be administered by mail or in person.
 
 

Quality of Life Models

QUALITY OF LIFE BREAST CANCER MODEL

Juarez, G., Hurria, A., Uman, G. & Ferrell, B. R. (2013). Impact of a bilingual education intervention on the quality of life of Latina breast cancer survivors. Oncology Nursing Society, 40(1), E50-E60. 
DOI: 10.1188/13.ONF.E50-E60.
 

QUALITY OF LIFE CANCER SURVIVOR MODEL

QUALITY OF LIFE OVARIAN CANCER MODEL 

Matzo, M., Graham, C., Troup, C. L., & Ferrell, B. (2014). Development of a patient education resource for women with gynecologic cancers: Cancer treatment and sexual health. Clinical Journal of Oncology Nursing, 18(3), 343-348.
 
Otis-Green, S., Wakabayashi, M.T., Morgan, R., Hakim, A., Ferrell, B., Sun, V., Yang, E. & Grant, M. (2013). Palliative care opportunities for women with advanced ovarian cancer associated with intraperitoneal chemotherapy. Journal of Palliative Medicine, 16(1), 44-53.

Sun, V., Otis-Green, S., Morgan, R., Wakabayashi, M., Hakim, A., Callado, M. E., Yang, E., Ferrell, B. & Grant, M. (2013).Toxicities, complications, and clinical encounters during intraperitoneal chemotherapy in 17 women with ovarian cancer. European Journal of Oncology Nursing, 17(3), 375-380. DOI:10.1016/j.ejon.2012.10.005DOI: 10.1089/jpm.2012.0174. 
 
Lowe, T., Ferrell, B., & Leong, L. (2007). Quality-of-life issues in the management of epithelial ovarian cancer. Current Treatment Options in Oncology, 8(6), 402-416.
DOI: 10.1007/s11864-007-0049-6.
 
Ferrell, B. R., Cullinane, C. A., Ervin, K., Melancon, C., Uman, G. C., & Juarez, G. (2005). Perspectives on the impact of ovarian cancer: women’s views of quality of life. Oncology Nursing Forum, 32 (6), 1143-1149. DOI: 10.1188/05.ONF.1143-1149.
 
Ferrell, B. R., Smith, S., Cullinane, C., & Melancon, C. (2003). Psychological wellbeing and quality of life in ovarian cancer survivors. Cancer, 98(5), 1061-1071.
 

QUALITY OF LIFE FAMILY CAREGIVER MODEL

Grant, M., Sun, V., Fujinami, R., Sidhu, R., Otis-Green, S., Juarez, G., Klein, L., & Ferrell, B. (2013). Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer. Oncology Nursing Forum, 40(4), 337-346.  DOI: 10.1188/13.ONF.337-346.
 

QUALITY OF LIFE EFFECT OF FATIGUE MODEL 

 

QUALITY OF LIFE HEMATOPOIETIC CELL TRANSPLANT (BONE MARROW TRANSPLANT) MODEL

Grant, M., Cooke, L., Williams, A. C., Bhatia, S., Popplewell, L., Uman, G., & Forman, S. (2012). Functional status and health-related quality of life among allogeneic transplant patients at hospital discharge: A comparison of sociodemographic, disease and treatment characteristics.  Supportive Care in Cancer, 20(11), 2697-2704.  DOI: 10.1007/s00520-012-1389-8.
 
Wong, F. L., Francisco, L, Togawa, K., Bosworth, A., Gonzales, M., Hanby, C., Sabado, M., Grant, M., et al. (2010). Long-term recovery after hematopoietic cell transplantation: Predictors of quality-of-life concerns. Blood, 115(12), 2508-2519.  
DOI: 10.1182/blood-2009-06-225631. 
 
Cooke, L, Gemmill, R., Kravits, K. & Grant, M. (2009). Psychological issues of stem cell transplant. Seminars in Oncology Nursing, 25(2), 139-150. 
DOI:10.1016/j.soncn.2009.03.008.
 
Shankar, S. M., Carter, A., Sun, C. L., Francisco, L., Baker, K. S., Gurney, J. G., Weisdorf, D. G., Forman, S. J., Robison, L. L., Grant, M., & Bhatia, S. (2007). Health care utilization by adult long-term survivors of hematopoietic cell transplant: Report from the bone marrow transplant survivor study. Cancer Epidemiology, Biomarkers & Prevention, 16(4), 834-839.
DOI: 10.1158/1055-9965.EPI-06-0714. 
 

QUALITY OF LIFE OSTOMY MODEL 

Sun V, Grant M, Wendel CS, McMullen CK, Bulkley JE, Herrinton LJ, Hornbrook MC, Krouse RS. Sexual function and health-related quality of life in long-term rectal cancer survivors. J Sexual Med 2016 Jun 15;13(7):1071-1079. PMID:27318020 PMCID: 4916495
 
Sun, V., Kim, J., Kim, J.Y., Raz, D.J., Merchant, S., Chao, J., Chung, V., Jimenez, T., Wittenberg, E., Grant, M. & Ferrell, B. (2015).  Dietary alterations and restrictions following surgery for upper gastrointestinal cancers:  key components of a health-related quality of life intervention. European Journal of Oncology Nursing, 
DOI: 10.1016/j.ejon.2015.01.008
 
Sun, V., Grant, M., McMullen, M., Altschuler, A., Mohler, M. J., Hornbrook, M. C., Herrinton, L. J, & Krouse, R. S. (2014). From diagnosis through survivorship: Health-care experiences of colorectal cancer survivors with ostomies. Support Care Cancer, 22(6), 1563-1570.  DOI: 10.1007/s00520-014-2118-2.
 
Wendel CS, Grant M, Herrinton LJ, Temple LKF, Hornbrook MC, McMullen CK, Bulkley JE, Altschuler A, Krouse RS. Reliability and validity of a survey to measure bowel function and quality of life in long-term rectal cancer survivors. Qual Life Res (2014);23(10):2831-2840. PMID:24890826 PMCID:4236297
 
Bulkley J, McMullen CK, Hornbrook MC, Wendel CS, Grant M, Altschuler A, Krouse RS. Spiritual well-being in long-term colorectal cancer survivors with ostomies. Psychooncology (2013);22(11):2513-2521. PMID:23749460 PMCID:4105015
 
Sun, V., Grant, M., McMullen, C. K., Altschuler, A., Mohler, M. J., Hornbrook, M. C., Herrinton, L. J., Baldwin, C. M., & Krouse, R. S. (2013) Surviving colorectal cancer: long-term, persistent ostomy-specific concerns and adaptations. Journal of Wound, Ostomy & Continence Nursing, 40(1), 61-72.
DOI: 10.1097/WON.0b013e3182750143.
 
Grant, M., McMullen, C., Altschuler, A., Hornbrook, M., Herrinton, L., Wendel, C., Baldwin, C., & Krouse, R.  (2012).  Irrigation practices in long-term survivors of colorectal cancer (CRC) with colostomies.  Clinical Journal of Oncology Nursing, 16(5), 514-519.
DOI: 10.1188/12.CJON.514-519.    
 
Gemmill, R., Kravits, K., Ortiz, M., Anderson, C., Lai, L., & Grant, M. (2011). What do surgical oncology staff nurses know about colorectal cancer ostomy care? The Journal of Continuing Education in Nursing, 42(2), 81-88. DOI: 10.3928/00220124-20101101-04.  
 
McMullen, C. K., Wasserman,  J., Altschuler, A., Grant, M. L., Hornbrook, M. C., Lijestrand, P., Briggs, C., Krouse, R. S.  (2011). Untreated peristomal skin complications among long-term colorectal cancer survivors with ostomies.  Clinical Journal of Oncology Nursing, 15(6), 644-650.
DOI: 10.1188/11.CJON.644-650.  
 
Sun V, Grant M, McMullen CK, Altschuler A, Mohler MJ, Hornbrook MC, Herrinton LJ, Baldwin CM, Krouse RS. Surviving colorectal cancer: Long-term, persistent ostomy-specific concerns and adaptations. J Wound Ostomy Continence Nurs (2013);40(1):61-72. PMID: 23222968 PMCID:3536890
 
Grant, M., McMullen, C. K., Altschuler, A., Mohler, M. J., Hornbrook, M. C., Herrinton,  L. J., Wendel, C. S., Baldwin, C. M., & Krouse , R. S.  (2011).  Gender differences in quality of life among long-term colorectal cancer survivors with ostomies.  Oncology Nursing Forum, 38(5), 587-596.  DOI: 10.1188/11.ONF.587-596
 
Liu, L., Herrinton, L. J., Hornbrook, M. C., Wendel, C. S. Grant, M., & Krouse, R. S. (2010). Early and late complications among long-term colorectal cancer survivors with ostomy or anastomosis. Diseases of the Colon & Rectum, 53(2), 200-212.     
DOI: 10.1007/DCR.0b013e3181bdc408.  
 
Altschuler, A., Ramirez, M., Grant, M., Wendel, C., Hornbrook, M. C. Herrinton, L, Krouse, R. S. (2009). The influence of husbands’ or male partners’ support on women’s psychosocial adjustment to having an ostomy resulting from colorectal cancer. Journal of Wound, Ostomy, and Continence Nursing, 36(3), 299-305. 
DOI: 10.1097/WON.0b013e3181a1a1dc. 
 
Baldwin, C. M., Grant, M., Wendel, C., Hornbrook, M. C., Herrinton, L. J. McMullen, C., et al. (2009). Gender differences in sleep disruption and fatigue on quality of life among persons with ostomies. Journal of Clinical Sleep Medicine, 5(4), 335-343.
 
Krouse RS, Herrinton LJ, Grant M, Wendel CS, Green SB, Mohler MJ, Baldwin CM, McMullen C, Rawl SM, Matayoshi E, Coons SJ, Hornbrook MC. Health-related quality of life among long-term rectal cancer survivors with an ostomy: Manifestations by sex. J Clin Oncol 2009 Oct;27(28):4664-4670. PMID:19720920 PMCID:2754912
 
Krouse, R. S., Herrinton, L. J., Grant, M., Wendel, C. S., Green, S. B., Mohler, M. J., et al. (2009). Health-related quality of life among long-term rectal cancer survivors with an ostomy: manifestations by sex. Journal of Clinical Oncology, 27(28), 4664-4670. DOI: 10.1200/JCO.2008.20.9502.
 
Ramirez, M., McMullen, C., Grant, M., Alschuler, A., Hornbrook, M. C., & Krouse, R. S. (2009). Figuring out sex in a reconfigured body: experiences of female colorectal cancer survivors with ostomies. Women Health, 49(8), 608 624. DOI: 10.1080/03630240903496093. 
 
Symms, M. R., Rawl, S. M., Grant, M., Wendel, C. S., Coons, S. J., Hickey, S., et al. (2008). Sexual health and quality of life among male veterans with intestinal ostomies. Clinical Nurse Specialist, 22(1), 30-40.
DOI: 10.1097/01.NUR.0000304181.36568.a7.
 

QUALITY OF LIFE PAIN IMPACT MODEL