Knowledge and Attitudes Survey Regarding Pain


Research Instruments

  1. Clinical Decision Making Tool - City of Hope, Duarte, CA
    This 14-item survey assesses nurses clinical decision making regarding pain management. 
  2. Controlling Pain Vignettes - City of Hope, Duarte, CA
    The vignettes for use with health care professionals, published in a series in the journal Nursing, provide case vignettes related to patient characteristics (i.e. age, behavior) and pain control. Options are presented along with the "right choice" and its rationale. Useful as a brief survey to assess staff knowledge and decisions regarding pain.
  3. CARES - An Acronyn Organized Tool for the Care of the Dying.
    Developed by Bonnie Freeman, is an educational tool to help nurses stay focused and provide a method to inventory necessary tasks to address during the often chaotic and stressful last few days to hours of a patient’s life.
  4. C.A.R.E.S. - A Tool for the Care of the Dying
    - Self Care
    - Emotional Support
    - Restlessness
  5. Family Pain Questionnaire - City of Hope, Duarte, CA
    The Family Pain Questionnaire (FPQ) is a sixteen-item ordinal scale that measures the knowledge and experience of a family caregiver in managing chronic cancer pain. This tool can be used in clinical practice as well as research.  
  6. Instruments Used in End of Life Care Education, City of Hope, Duarte, CA  
    A collection of instruments currently in use by City of Hope investigators to assess staff knowledge and needs to improve end of life care. Curriculum Survey for Nursing Schools; Clinical Nurse Survey; Home Care/Hospice Agencies; Home Care Nurses and HHAs; Knowledge Assessment for Nurses; Knowledge Assessment for HHA's; Chart Audit Tool; and a Case Analysis Form.
  7. Knowledge and Attitudes Survey Regarding Pain - City of Hope, Duarte, CA
    An instrument to measure knowledge and attitudes regarding pain in health care professionals. Used extensively by clinical settings for several years, this tool provides descriptive data regarding areas of needed pain education. (see Item "25" below for pediatric version).        
  8. Pain Audit Tools - City of Hope, Duarte, CA
    These tools have been used extensively in pain/QA efforts. Includes pain chart audit instrument, a version for surgical pain, and a patient interview tool. (Also see related articles under Pain Assessment Tools).
  9. Patient Pain Questionnaire - City of Hope, Duarte, CA
    The Patient Pain Questionnaire (PPQ) is a sixteen-item ordinal scale that measures the knowledge and experience of a patient in managing chronic cancer pain. This tool can be useful in clinical practice as well as for research.      
  10. Pediatric Nurses & Knowledge and Attitudes Survey Manworren and Shriners Hospitals for Children 
    Modified Pediatric Nurses Knowledge and Attitudes Survey (PNKAS) regarding pediatric pain in burns, orthopedics and spinal cord injuries. Answer key also provided.

Quality of Life Models

Quality of Life Breast Cancer Model

Juarez, G., Hurria, A., Uman, G. & Ferrell, B. R. (2013). Impact of a bilingual education intervention on the quality of life of Latina breast cancer survivors. Oncology Nursing Society, 40(1), E50-E60. 
DOI: 10.1188/13.ONF.E50-E60.

Quality of Life Cancer Survivor Model

Quality of Life Ovarian Cancer Model

Matzo, M., Graham, C., Troup, C. L., & Ferrell, B. (2014). Development of a patient education resource for women with gynecologic cancers: Cancer treatment and sexual health. Clinical Journal of Oncology Nursing, 18(3), 343-348.
Otis-Green, S., Wakabayashi, M.T., Morgan, R., Hakim, A., Ferrell, B., Sun, V., Yang, E. & Grant, M. (2013). Palliative care opportunities for women with advanced ovarian cancer associated with intraperitoneal chemotherapy. Journal of Palliative Medicine, 16(1), 44-53.

Sun, V., Otis-Green, S., Morgan, R., Wakabayashi, M., Hakim, A., Callado, M. E., Yang, E., Ferrell, B. & Grant, M. (2013).Toxicities, complications, and clinical encounters during intraperitoneal chemotherapy in 17 women with ovarian cancer. European Journal of Oncology Nursing17(3), 375-380. DOI:10.1016/j.ejon.2012.10.005DOI: 10.1089/jpm.2012.0174. 
Lowe, T., Ferrell, B., & Leong, L. (2007). Quality-of-life issues in the management of epithelial ovarian cancerCurrent Treatment Options in Oncology, 8(6), 402-416.
DOI: 10.1007/s11864-007-0049-6.
Ferrell, B. R., Cullinane, C. A., Ervin, K., Melancon, C., Uman, G. C., & Juarez, G. (2005). Perspectives on the impact of ovariancancer: women’s views of quality of life. Oncology Nursing Forum, 32 (6), 1143-1149. DOI: 10.1188/05.ONF.1143-1149.
Ferrell, B. R., Smith, S., Cullinane, C., & Melancon, C. (2003). Psychological wellbeing and quality of life in ovarian cancer survivorsCancer, 98(5), 1061-1071.

Quality of Life Family Caregiver Model

Grant, M., Sun, V., Fujinami, R., Sidhu, R., Otis-Green, S., Juarez, G., Klein, L., & Ferrell, B. (2013). Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer. Oncology Nursing forum, 40(4), 337-346.  DOI: 10.1188/13.ONF.337-346.

Quality of Life Effect of Fatigue Model


Quality of Life Hematopoietic Cell Transplant (Bone Marrow Transplant) Model

Grant, M., Cooke, L., Williams, A. C., Bhatia, S., Popplewell, L., Uman, G., & Forman, S. (2012). Functional status and health-related quality of life among allogeneic transplant patients at hospital discharge: A comparison of sociodemographic, disease and treatment characteristics.  Supportive Care in Cancer, 20(11), 2697-2704.  DOI: 10.1007/s00520-012-1389-8.
Wong, F. L., Francisco, L, Togawa, K., Bosworth, A., Gonzales, M., Hanby, C., Sabado, M., Grant, M., et al. (2010). Long-termrecovery after hematopoietic cell transplantation: Predictors of quality-of-life concerns. Blood, 115(12), 2508-2519.  
DOI: 10.1182/blood-2009-06-225631. 
Cooke, L, Gemmill, R., Kravits, K. & Grant, M. (2009). Psychological issues of stem cell transplantSeminars in Oncology Nursing, 25(2), 139-150. 
Shankar, S. M., Carter, A., Sun, C. L., Francisco, L., Baker, K. S., Gurney, J. G., Weisdorf, D. G., Forman, S. J., Robison, L. L., Grant, M., & Bhatia, S. (2007). Health care utilization by adult long-term survivors of hematopoietic cell transplant: Report from the bone marrow transplant survivor studyCancer Epidemiology, Biomarkers & Prevention, 16(4), 834-839.
DOI: 10.1158/1055-9965.EPI-06-0714. 

Quality of Life Ostomy Model

Sun V, Grant M, Wendel CS, McMullen CK, Bulkley JE, Herrinton LJ, Hornbrook MC, Krouse RS. Sexual function and health-related quality of life in long-term rectal cancer survivors. J Sexual Med 2016 Jun 15;13(7):1071-1079. PMID:27318020 PMCID: 4916495
Sun, V., Kim, J., Kim, J.Y., Raz, D.J., Merchant, S., Chao, J., Chung, V., Jimenez, T., Wittenberg, E., Grant, M. & Ferrell, B. (2015).  Dietary alterations and restrictions following surgery for upper gastrointestinal cancers:  key components of a health-related quality of life intervention. European Journal of Oncology Nursing, 
DOI: 10.1016/j.ejon.2015.01.008
Sun, V., Grant, M., McMullen, M., Altschuler, A., Mohler, M. J., Hornbrook, M. C., Herrinton, L. J, & Krouse, R. S. (2014). From diagnosis through survivorship: Health-care experiences of colorectal cancer survivors with ostomiesSupport Care Cancer, 22(6), 1563-1570.  DOI: 10.1007/s00520-014-2118-2.
Wendel CS, Grant M, Herrinton LJ, Temple LKF, Hornbrook MC, McMullen CK, Bulkley JE, Altschuler A, Krouse RS. Reliability and validity of a survey to measure bowel function and quality of life in long-term rectal cancer survivors. Qual Life Res (2014);23(10):2831-2840. PMID:24890826 PMCID:4236297
Bulkley J, McMullen CK, Hornbrook MC, Wendel CS, Grant M, Altschuler A, Krouse RS. Spiritual well-being in long-term colorectal cancer survivors with ostomies. Psychooncology (2013);22(11):2513-2521. PMID:23749460 PMCID:4105015
Sun, V., Grant, M., McMullen, C. K., Altschuler, A., Mohler, M. J., Hornbrook, M. C., Herrinton, L. J., Baldwin, C. M., & Krouse, R. S. (2013) Surviving colorectal cancer: long-term, persistent ostomy-specific concerns and adaptationsJournal of Wound, Ostomy & Continence Nursing, 40(1), 61-72.
DOI: 10.1097/WON.0b013e3182750143.
Grant, M., McMullen, C., Altschuler, A., Hornbrook, M., Herrinton, L., Wendel, C., Baldwin, C., & Krouse, R.  (2012).  Irrigation practices in long-term survivors of colorectal cancer (CRC) with colostomies.  Clinical Journal of Oncology Nursing, 16(5), 514-519.
DOI: 10.1188/12.CJON.514-519.    
Gemmill, R., Kravits, K., Ortiz, M., Anderson, C., Lai, L., & Grant, M. (2011). What do surgical oncology staff nurses know about colorectal cancer ostomy care? The Journal of Continuing Education in Nursing, 42(2), 81-88. DOI: 10.3928/00220124-20101101-04.  
McMullen, C. K., Wasserman,  J., Altschuler, A., Grant, M. L., Hornbrook, M. C., Lijestrand, P., Briggs, C., Krouse, R. S.  (2011). Untreated peristomal skin complications among long-term colorectal cancer survivors with ostomies.  Clinical Journal of Oncology Nursing, 15(6), 644-650.
DOI: 10.1188/11.CJON.644-650.  
Sun V, Grant M, McMullen CK, Altschuler A, Mohler MJ, Hornbrook MC, Herrinton LJ, Baldwin CM, Krouse RS. Surviving colorectal cancer: Long-term, persistent ostomy-specific concerns and adaptations. J Wound Ostomy Continence Nurs (2013);40(1):61-72. PMID: 23222968 PMCID:3536890
Grant, M., McMullen, C. K., Altschuler, A., Mohler, M. J., Hornbrook, M. C., Herrinton,  L. J., Wendel, C. S., Baldwin, C. M., & Krouse , R. S.  (2011).  Gender differences in quality of life among long-term colorectal cancer survivors with ostomies.  Oncology Nursing Forum, 38(5), 587-596.  DOI: 10.1188/11.ONF.587-596
Liu, L., Herrinton, L. J., Hornbrook, M. C., Wendel, C. S. Grant, M., & Krouse, R. S. (2010). Early and late complications amonglong-term colorectal cancer survivors with ostomy or anastomosis. Diseases of the Colon & Rectum, 53(2), 200-212.     
DOI: 10.1007/DCR.0b013e3181bdc408.  
Altschuler, A., Ramirez, M., Grant, M., Wendel, C., Hornbrook, M. C. Herrinton, L, Krouse, R. S. (2009). The influence ofhusbands’ or male partners’ support on women’s psychosocial adjustment to having an ostomy resulting from colorectal cancer.Journal of Wound, Ostomy, and Continence Nursing, 36(3), 299-305. 
DOI: 10.1097/WON.0b013e3181a1a1dc. 
Baldwin, C. M., Grant, M., Wendel, C., Hornbrook, M. C., Herrinton, L. J. McMullen, C., et al. (2009). Gender differences in sleep disruption and fatigue on quality of life among persons with ostomies. Journal of Clinical Sleep Medicine, 5(4), 335-343.
Krouse RS, Herrinton LJ, Grant M, Wendel CS, Green SB, Mohler MJ, Baldwin CM, McMullen C, Rawl SM, Matayoshi E, Coons SJ, Hornbrook MC. Health-related quality of life among long-term rectal cancer survivors with an ostomy: Manifestations by sex. J Clin Oncol 2009 Oct;27(28):4664-4670. PMID:19720920 PMCID:2754912
Krouse, R. S., Herrinton, L. J., Grant, M., Wendel, C. S., Green, S. B., Mohler, M. J., et al. (2009). Health-related quality of lifeamong long-term rectal cancer survivors with an ostomy: manifestations by sex. Journal of Clinical Oncology, 27(28), 4664-4670. DOI: 10.1200/JCO.2008.20.9502.
Ramirez, M., McMullen, C., Grant, M., Alschuler, A., Hornbrook, M. C., & Krouse, R. S. (2009). Figuring out sex in a reconfigured body: experiences of female colorectal cancer survivors with ostomiesWomen Health, 49(8), 608 624. DOI: 10.1080/03630240903496093. 
Symms, M. R., Rawl, S. M., Grant, M., Wendel, C. S., Coons, S. J., Hickey, S., et al. (2008). Sexual health and quality of lifeamong male veterans with intestinal ostomiesClinical Nurse Specialist, 22(1), 30-40.
DOI: 10.1097/01.NUR.0000304181.36568.a7.

Quality of Life Pain Impact Model